Chickenpox can be irritating, uncomfortable and a little scary for the vast majority of children but it isn’t necessarily extremely dangerous.
26-year-old mother Stephanie Webster wasn’t overly concerned when Oscar her son, developed a red rash all over his body.
Although she was advised it was a different condition after she took him to see the doctor.
This completely shocked her, they had noticed little red dots on his body when Oscar was born.
The red dots had become much more evident by the time he reached 10 months.
The rash spread across his body and face and refused to go regardless of what they tried.
Initially, his parents thought he had just an ordinary rash, or possibly even chickenpox.
His mother remarks “At first we didn’t realize there was anything wrong, we thought it was just something normal like neonatal rash – but a midwife saw him and realized there might be a problem since then, the spots have got progressively worse and worse.”
Parents Daniel and Steph brought heir little boy to the doctors as the patches began to increase in number, and grew redder.
They desperatly wanted to know what could be causing his condition.
Finally, the little boy was diagnosed with Langerhans cell hypertrophy; a cancer-like disease that attacks cells of the immune system.
Approximately 1 in 100,000 children are born in the UK each year with Langerhans’ cell histiocytosis (LCS).
The fact that Oscar was born with spots is almost unheard however it can begin as a single skin ulcer.
His spots have continued to baffle the doctors as the young boy has been treated with steroids and chemotherapy, but the spots remain.
Oscar’s parents are left wondering how his condition will develop although the disease does have a 90% survival rate in children.
People tend to stay well away from Oscar as a result of his appearance as often they fear it might be contagious.
Stephanie says “People always ask if he’s got chickenpox, and they often stare at him and point him out in the street – people don’t want to come near him because they think they might catch it.”
His parents do their best to ignore the negative behavior.
Stephanie says: “It does sometimes upset me, but if you let every little thing upset you you’d never leave the house, so we just get on with it.”
The family hopes to educate others on this unusual condition, and that people will come to learn the condition isn’t dangerous in any way.
Oscars condition means he has a host of other problems to battle with as well, including an enlarged liver and spleen.
Because his blood cells and bone marrow aren’t working as they should be, his immune system is weakened.
Oscar’s eyes could prohibit his sight if they continue to grow due to the spots surrounding his eyes.
“He’s got spots all over his body – even on his tongue and his eyeballs – which makes me worry about what’s going on inside,” Stephanie explains.
The family has very little answers as to what has caused the problem and how they can change it for the better.
Oscar is improving going forward even though little is known about the disease and doctors are at a loss with how best to help.
Oscar has undergone countless blood tests, weekly blood and platelet transfusions, six bone marrow tests and two skin biopsies, since his birth in May, 2015.
Despite his condition, he remains his family’s biggest ray of light, he has never let his appearance get him down yet!
His mom says “As long as he’s happy and healthy, we don’t care about how he looks on the outside. We just want to find some answers.”
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Published By Trending Stylist.